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The lived experience of hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders in the United Kingdom: findings from a national cross-sectional survey

Kathryn M. Berg & Dervil Dockrell

Disability and Rehabilitation2026https://doi.org/10.1080/09638288.2026.2646723article
AJG 1
Weight
0.50

What the paper says

Our findings highlight the urgent need for equitable, multidisciplinary care pathways co-designed with patients to reduce diagnostic delay, improve care coordination, and address the wide-ranging impacts of hEDS/HSD.

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https://doi.org/https://doi.org/10.1080/09638288.2026.2646723

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@article{kathryn2026,
  title        = {{The lived experience of hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders in the United Kingdom: findings from a national cross-sectional survey}},
  author       = {Kathryn M. Berg & Dervil Dockrell},
  journal      = {Disability and Rehabilitation},
  year         = {2026},
  doi          = {https://doi.org/https://doi.org/10.1080/09638288.2026.2646723},
}

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The lived experience of hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders in the United Kingdom: findings from a national cross-sectional survey

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Evidence weight

0.50

Balanced mode · F 0.40 / M 0.15 / V 0.05 / R 0.40

F · citation impact0.50 × 0.4 = 0.20
M · momentum0.50 × 0.15 = 0.07
V · venue signal0.50 × 0.05 = 0.03
R · text relevance †0.50 × 0.4 = 0.20

† Text relevance is estimated at 0.50 on the detail page — for your query’s actual relevance score, open this paper from a search result.