Critically Rethinking the Right Not to Know: Legal Ambiguity and Theoretical Fragility
Abbas Mirshekari & Jamshid Zargari
Abstract
In an era marked by unprecedented access to information and rapid advancements in health care technologies, the Right Not to Know (RNTK) has emerged as a key yet contentious concept within legal discourses. RNTK grants individuals the capacity to refuse knowledge about their health care or genetic profile, thereby strengthening personal autonomy and self-determination. This right is increasingly incorporated into international legal frameworks and human rights principles as a protection against paternalistic tendencies in health care and the overwhelming flood of contemporary data. Despite this development, its legal enforcement remains inconsistent, situated in a regulatory grey zone characterised by uncertainty and diverse interpretations. Theoretically, RNTK’s validity is both supported and challenged. The current study employs a thorough examination of these aspects to evaluate whether RNTK represents an established right in the field of human rights or a contentious right in international and domestic law, especially Australia. This analysis aims to clarify its broader implications for societies.
Evidence weight
Balanced mode · F 0.40 / M 0.15 / V 0.05 / R 0.40
| F · citation impact | 0.50 × 0.4 = 0.20 |
| M · momentum | 0.50 × 0.15 = 0.07 |
| V · venue signal | 0.50 × 0.05 = 0.03 |
| R · text relevance † | 0.50 × 0.4 = 0.20 |
† Text relevance is estimated at 0.50 on the detail page — for your query’s actual relevance score, open this paper from a search result.